ERN-RHD

An application for the ERN in Rare Hematological diseases (ERN-RHD) is being developed led by ENERCA coordinator, Prof Joan Lluis Vives Corrons.
Network disease coverage will be expanded by including Rare Hematological diseases in thematic sub-nets.
JOIN THE ERN-RHD (here)

News

  • First Rare Barometer Voices survey on the impact of rare diseases on daily life

    September 15, 2016

    EURORDIS has developed the Rare Barometer Voices, a new interactive survey panel available in 23 languages that collects the experiences of people that are living with or affected by a rare disease. The first stage of the study is now open!

  • eENERCA Closing Meeting - 2nd September, block your agenda and join us!

    July 27, 2016

    eENERCA project is coming to an end the upcoming month of September. On behalf of ENERCA team, we are delighted to invite you to eENERCA Closing Meeting to be held the 2nd September 2016 in Barcelona. The aim of this closing meeting is to join together all eENERCA partners in order to: Present the e-platforms and final outcomes from this fourth phase of ENERCA project and present the potential sustainability of the network with the achievement of EuroBloodNet, the proposal sent to the European Commission for the recognition as European Reference Network in Rare Hematological Diseases.

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